Diagnosis Dispute Leads to Lost Custody – Justina Pellitier

January 1, 2015

Justina Pelletier finally made it home to her family in June of 2014, after 16 months at the mercy of Boston Children’s Hospital (BCH) and the State of Massachusetts Department of Child and Family Services (DCFS). According to her doctors at Tuft’s Medical Center, the 17-year-old suffers from mitochondrial disease. But doctors at neighboring BCH diagnosed her instead with somatoform disorder – they believed her sickness was all in her head.

When Justina’s parents disagreed with BCH’s analysis, the hospital accused them of medical neglect and asked the state to take custody of her, which it did. Fit parents, backed by a fully licensed and well respected teaching hospital, lost custody of their daughter over a diagnosis dispute, and did not get her home for nearly a year and a half.

Justina

By the time it was over, the head of DCFS had resigned and the nation had been roused, but poor Justina’s body had been decimated for want of proper treatment.

Update (February 2016): Her story reemerged in 2016 as the family filed suit in federal court against the state and the hospital who so severely injured their daughter. Here is an update on the lawsuit by the Pelletier family to include the response from Boston Children’s Hospital.

Share This

Help Protect Parental Rights

Help Protect Parental Rights

Your support enables us to educate and inform the public and policymakers regarding parental rights.

Be an Informed Parent

Join our email list for updates about parental rights in America.